Project Kindness

Last February I got a call from my dear friend Vicki. I could tell by the crackle in her voice when she said Hi Sweetie, I have an idea that I want to talk to you about and I want you to be a part of it. Like usual I got goosebumps right away because I knew this little project idea was going to be something meaningful for both of us. I just had no idea it was going to be so perfectly choreographed with the struggles that were unfolding in my own life. However, there is a part of me that believes that Vic knew deep down it was exactly what I needed. Vicki was preparing to turn 60, and in celebration of all of her incredible, sometimes difficult and always lesson-filled years she wanted to come up with a way to give back. So we dove in right away and came up with a plan to not only send love to the 60 women who have inspired, supported, and guided Vicki through the years, but we also we also set out to create a kindness pay-it-forward campaign of our own in, hopes that we could spread kindness even further. We coined our passion-filled project “Project Kindness”. Vicki’s plan was to mail 60 personalized cards to 60 women who have inspired, supported, and helped to guide her over the past 60 years. To take it a step further she wanted to include $5 in each card so that each woman could do something special for themselves, however, our hope was also to inspire each of these 60 women to spread a little kindness of their own by keeping the trail of kindness going. 

Corryn and Mommy 2018

I knew right away that I wanted my first Project Kindness action to be a lesson for my young daughter. I was fortunate enough to have some pretty strong role models in my life that taught me the value of kindness, however, I remember one lesson, in particular, that was a defining moment in developing my own personal character. I was in 4th grade at Patterson Elementary and there was a new student who was having a really hard time fitting in with the other students in my class. I’m from a small town where everyone knows who you are so looking back now, I can see how hard it must have been to break into social groups that had been forming since preschool. As a 9-year-old, I remember feeling bad when I noticed that this new girl seemed to be a little down. I even remember taking the time to talk to her and make her feel welcome, but when my classmates started teasing her, I froze. I knew what they were doing was wrong, and I knew I was not going to join them. However, I was lacking the confidence that I needed to stand up to my friends in her defense. It was so many years ago now, but I still remember it very well because it was a bit of a struggle for me. Some time had passed and things had gotten better… or less noticeable on the outside, but the teasing or bullying continued to happen a bit behind the scenes. That’s when the school counselor Jane Jordan pulled myself and a fellow classmate into her office. I was a panicked mess when we were called to the principal’s office because I was NOT a kid that got into trouble. When we got there, we were immediately told that we had done nothing wrong. In fact, the counselor actually thanked us for not joining in on the teasing with this student, and told us that she wanted to talk to the two of us specifically because she saw us as leaders in our classroom, and in our school. Most of all, she thought that we might have the ability to help in a bigger way. She talked a little bit about kindness and in a very subtle way she suggested that if we stood up to our classmates in support of this new student, the rest of our class might just follow our lead in welcoming her into the group. Jane may not know it, but in that very short conversation, she helped shape such a big part of the person I am today. She not only helped me to understand and act on my own empathy, but she also helped me to realize how powerful one simple act of kindness can be for someone who needs it. For us, this request seemed like something really small, but to this young girl, it was something much bigger. In fact, it just may have been everything to her in that moment.

This very positive lesson came full circle for me this past year when I found myself in Jane’s shoes. Only this time the new-girl who was struggling to fit in, was my daughter Corryn. For the past few years, Jordan and I have been working towards the goal of moving into the Forest Hills school district because it offers one of the very best educations in the area. Last summer we were on the search for the perfect house in a VERY hot housing market and unfortunately, we didn’t find our home in time for Corryn to start school in her new neighborhood. However, we were lucky enough to win the school lottery and get her into the Forest Hills district at Collins Elementary. In another meant-to-be moment, Corryn was placed in Miss Jenell Spindle’s Kindergarten class the Friday before school started. We got to meet Jenell her teacher, a half an hour before school started the following Monday morning, and within the first moments of meeting her, I knew my baby was in the right place… Janell has a big heart and you can truly see her love for each and every student just by looking into her eyes. She is one of those people that leave a lasting impression on your heart.

Corryn and Miss Janell Spindal, Collins Elementary School. 2017

I was the classic mom of an only child starting kindergarten; both tearful and excited for my baby to conquer the world. And Corryn, well…. she just couldn’t wait to meet all of her new friends. She had always been little miss social and independent, so we were not worried about how she would do as she embraced this new adventure. In fact, I barely got a hug as the bell rang and she ran off to play with all of the other kids. She loved kindergarten, her teacher, and she had lots of friends that kept her excited to come back every single day. However, all of this changed purchased our new home.

Initially, we were very torn. We absolutely knew that we would move Corryn to Ada Elementary eventually, however, the question was when. Do we uproot her during the school year after she has already formed relationships with both her teacher and so many friends, or do we let her finish out the year with a teacher who knows and loves her and let her start fresh at a new school in the fall? It truly was one of the hardest decisions we have had to make as parents. After all, we were moving for Corryn, yet it seemed to be hurting her the most during in that moment. After a few weeks, we decided to talk with both schools and work together to make the best decision we could. Everyone involved agreed that Corryn was a very confident, flexible and easy-going little girl who seemed to be friends with everyone in the class. In the end, we all felt she would do really well with the transition and decided that she should move schools right away so she could start building relationships with the children that she would essentially be growing up with.

Although the process was hard, it was also seamless. The teachers and principals from both schools communicated with one another to make the transition as easy as possible for us, and for Corryn. The plan was to move her after Thanksgiving break. We didn’t tell Corryn about the move in schools until the week before. When we broke the news, she did seem really sad, however, she was very excited that she was going to be able to go to school with her best friend Jackson, and that she would be able to ride the bus. On her last day at Collins Elementary, we stopped at her new school to take a tour and meet her new teacher Mrs. Anderson. And then took treats to her classmates at Collins where they had a little going away party planned for her. Although Corryn seemed to be doing fine, it was a pretty hard day for Jordan and I. Ok it was pretty terrible. We both walked out the school that morning in tears… Jordan included. We just couldn’t help but feel that everything that we had been fighting for in moving, was now ripping our baby from a school and a teacher who loved her. As I walked into to pick Corryn up that final afternoon, the lump in my throat was quite hard to swallow but I managed to compose myself until I walked around the corner and literally ran face first into Corryn’s teacher Jenell. She had just taken Corryn down to after-school care and she was teary eyed herself. As we walked down the hall to get her together she gave me one more giant hug and told me how much she enjoyed having Corryn in her class and that she really enjoyed getting to know me as well. You could see and feel the love pouring out of this amazing women and when the tears started to stream down her face. Before I knew it, we were both losing it, right there in the hallway. One of the biggest gifts that Jenell gave me was in tearfully telling me that she was really going to miss the “positive energy” that Corryn brought to her class. In that moment I knew she loved my sweet girl and wanted the best for her as much as we did, but my mind also filled with very mixed and fearful emotions that have been spiraling in my mind since the day I was diagnosed. 

Saying goodbye was hard, but we quickly shifted our focus to the exciting new adventure that Corryn was going to have the following week. We focused all of our energy into building her up for a positive new start at a brand new school. She was pretty excited from the start because her buddy told her that Ada Elementary had a rock wall in the gym, and because in her own words “she was really excited to make even more friends!” As a bonus Miss Spindle happened to know her new teacher, so she talked with her before we transitioned and got her caught up on all things Corryn. Our new principal Mrs. Van Antwerp and teacher Mrs. Anderson went way out of their way and did an amazing job of making Corryn, Jordan and I feel welcomed into the community they have build within the school. Although it was a hard day for us as parents, we received updates and photos from both her teacher and her principal throughout the day and best of all we got to see very big smiles on Corryn’s face. We were blessed with two amazing schools in one school year put our minds at ease. 

Corryn truly loves Ada Elementary however after a week or so, she started to realize that she wasn’t going back to her old school. She started saying that she missed her friends, but it took a few weeks before we noticed a shift in her demeanor. We really wanted to chalk it up to her missing her first kindergarten class initially, but it was more than that. She seemed really down and a bit withdrawn at first, but never wanted to talk about what was bothering her. Sadly I think she has learned how to use a game face from her mommy, which makes me feel even worse. She realized that her being upset, concerned us, so she started keeping it all inside and the impressionable age of five. Although she managed to take it all and stride at school, we could see that she was no longer our confident and social little girl. We could see the sprinkle was fading out of her big brown eyes and it was breaking our hearts in more ways than we could ever count. The hardest part was hearing her break down when she told me that the kids at her new school didn’t like her, and that she didn’t want to tell us because she didn’t want us to think she was weird too. As a parent you are helpless. No matter how much you teach, guide, prepare and plan, you cannot protect your babies when you send them out into the world. But we knew that we had to try.

Making the call was the hard part because we didn’t want to overreact and shield her from a good relationship building lesson, but at the same time, we didn’t want this to become something that defined her early school years. We were happy to hear that her new teacher was already taking notice of the shift in demeanor as well, and she already had a few suggestions for us. Both her teacher and her school counselor jumped into action right away and took the necessary steps to help Corryn navigate through a very challenging situation and even helped her to personally grow from the process. 

It was during this very long and emotional process, that I got the call from my dear friend Vicki and the stars again aligned for us. Our conversation took me back to the day I welcomed my beautiful baby into this world, but also to the day that I realized that cancer could take me from her. It hit me like a ton of bricks to again realize I may not have the time to teach my daughter all of the things that I wanted to teach her and most of all, and it I I may not be able to use my own experiences to help shape her into the person I had hoped she would become.

This topic was top of mind for me during that first painful and scary few years, but as anyone who has faced cancer knows, you have no choice but to prepare for the very worst… and hope for the very best. I made a point to talk to my husband about all of the things that I wanted Corryn to know about me and I set a few plans into motion in the process. I reached out to a photographer to ask her to help me document my story so I could create a book for her daddy to give her when she was at the right age if I wasn’t here to do it myself. Cancer has a way of taking over your world and turning everything upside down at the same time, but if you are the parent of a young child this emotional battleground takes you to a whole new level. You try to be hopeful, but cannot help but feel helpless and defeated every single day. It is an epic internal battle that you truly cannot understand unless you have faced it yourself. And if you are an “action” driven “fixer” like myself, knowing that you have no ability or power to change what is happening to you and your family, is by far the hardest part.

When the fear and the sadness took over, I subconsciously distracted myself with planning for the unknown. I had a mental checklist that helped me to push the emotional turmoil to the outer edges of my mind. I spent endless hours making lists of what I wanted Corryn to learn from me in my time with her, I wrote her cards for every milestone I could miss, and I even went as far as contacting women in my life who I felt could help Jordan teach her important life lessons when the perfect time arose. I was determined to do everything in my power to guide my baby girl, even if I couldn’t be here to do it myself. I have learned a lot about myself and my cancer since that very scary first day, and I am now very optimistic about my long-term prognosis, but as another parent and I discussed today; I am a very optimistic person 95% of the time, but there will always be the other 5% that leaves me feeling “cautiously optimistic” in knowing that the floor could fall out from under me at any moment. This is why I have vowed to channel my sometimes crippling fears into heartfelt and meaningful actions and make a difference with the life that I have been given.

Today marks 4 years to the day that I met Dr. Elaina Tanner and discussed the lump that I found in my breast. Although I gained an amazing friend in Eliana, this memory has taken a bit of the sweetness out of Valentine’s Day these past few years. However, thanks to my amazing friend Vicki for initiating this project one year ago, to Heather, a very very very special and amazing first grade teacher shares my passion to make a difference but also truly holds a special place in my heart, and an equally amazing principal who not only made a trip to my house to discuss this project while I was recovering from surgery, but also allowed me to join her in her own kindness efforts at Ada Elementary; I spent my day full of excitement and joy as I watched this crazy little idea come to life at Corryn’s school with wall graphics, staff shirts, announcements made by the principal and Corryn, videos, and photos. The best part was that I was able to join in the Project Kindness fun that afternoon at Corryn’s Valentine’s Day party and meet a few of the faculty members that I have not yet met. 

The idea for Project Kindness was born out Vicki’s desire to give back after a lifetime of gratitude and love, and also my desire to make this world a kinder place for my daughter. The past few years have taught me a lot about who I am and how I hope to be remembered, but this experience has specifically taught me to “be the example” that I want my daughter to learn from. The best part of all this is, that I get to be here to share this project and this lesson with her myself. I cannot help but feel that the experience I had during my own elementary school years truly was meant to prepare me to help my own daughter through the very same experience and that it was meant to ultimately motivate me to initiate Project Kindness within Corryn’s school. 

Project Kindness Phase One. Mrs. Anderson’s Kindergarten Class 2018

Project kindness is a pay-it-forward campaign that starts in the classroom and encourages our children to be kind in every aspect of their life. The project technically started last year in Mrs. Anderson’s Kindergarten class when where her teacher shared a bit of the background with the students and Corryn completed her first kindness action in making every classmate a card, but… it officially launched school-wide today at Ada Elementary. The process and the specifics will be ever evolving as we set everything into motion this month, but Kim, Corryn’s principal has already done an amazing job of laying a foundation for the program and helping me to put an “action plan” in place for her students. For now the project lives within the walls of Ada Elementary, however, our bigger goal is to walk kindness right out of our school, outside of Ada, and beyond. And our greatest hope is that Project Kindness will become a kindness movement that other schools want to join in on. Together we truly can walk Kindness around the world. 

I owe a big thank you to so many who have helped with this process and I want you all to know that this Valentine’s Day… my heart was full of happiness, gratitude, and hope.

The Words I Never Wanted To Hear.

A causal dinner complete with small talk. She asked how my oncology appointment went,  expressed concern over the uncertainty of two area’s found on my last MRI, and worry that I would again face challenges in getting my insurance to cover my followup MRI, and then she said, “while we are on the topic, I have to tell you something that you’re not going to want to here”. I quickly said, What is it? What’s wrong and felt my heart sink deep into my stomach. She said, I don’t even know how to tell you this as she reached into her purse to grab a folded white sheet of paper. I could feel the monster creeping around the corner as the air got thicker.

The first thing I saw was the words Invasive Ductal Carcinoma. The three words that have literally been burned in my mind since February 15th, 2015. The three words that forever changed my life and turned my world upside down. I suddenly saw the past two and a half years playing out in my head slide by slide. Every moment flashing a little faster than the moment before. My palms got sweaty, as I could feel the stress-induced hot flash burning inside of me. All of a sudden the room went silent, and my world stopped just as it did the very first time I heard the words Invasive Ductal Carcinoma. Everything slowed down and my senses heightened. It was as if I could see what was playing out from a birds-eye view. A thousand questions spiraled into my mind, but for a second I could say nothing because it took every ounce of my being to hold back the tears this time around. I took a deep breath and pushed the emotion deep inside as I looked up at my mom and calmly said no… not you too?

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Lung Update: The Good, The Bad, and Even The Sad.

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It has been a little over a week since I was released from the hospital for the second time and I am once again perplexing my entire medical team…. or as my nurses point out, keeping all of my specialists on their toes. I will be honest, It has been a really hard few weeks as I recover from my chest tube procedure and extended stays in the hospital and both the emotional and physical pain that comes with that. I have been doing all that I can physically stand to do to distract myself from the fact that I have again been reminded that I am that .1% and as always I fall into the rare category with everything. As hard as it is for me, I have I to admit that I have had some of my lowest points since the very day I was diagnosed these past few weeks and, I actually took my positive and hopeful hat off and just felt, sad, frustrated, and even mad that I am still going through what I am going through 17 months after my diagnosis. I had prepared my mind and my body to face a year of sickness and pain in prepped both my mind and my body for the hardest battle of my life, however that was all with the expectation that after those very horrible and trying 12 months of treatment and surgeries, I would again regain my life or at least feel better, not worse.

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However, here we are a year and a half later and I am still being wheeled off to unplanned surgeries, and sitting in the infusion chairs far more then I would like to admit. As this point, my mind is sharp, my determination is strong, and I am ready to jump back into life, however my body is fighting me a bit on how soon this transition can and will happen. My team is again reminding me that my journey with breast cancer specifically is not the norm and I shouldn’t compare or beat myself because I have had to face many obstacles that do not arise in most or any other cases.. I have heard this from the beginning, and I have taken it in stride because to me, my journey is all I have ever known. With each curve ball I have been thrown, I have held my head high and forged through with an optimistic smile. I really never have looked up to the sky and asked why me which until this past week. I have faced every single sad, scary and frustrating day with true and real optimism and I have always believed that everything that has and is happening to me, was part of a greater and bigger plan for me in the long run a test of sorts that would take me where I was meant to be, but for whatever reason these past two surgeries and past 3 hospital stays have gotten me pretty down. I am not sure if it is because I am again trying to come to terms with the fact that it seems that no matter what, my path always comes with scares and complications or if it is just all catching up to me, but after a week and a half in the hospital, I had, just plain had enough. I wanted to go home. Ok, really I wanted to run out of the hospital and run away from everything that my life has become. I just wanted to disappear and pretend none of this was happening and although I know my medical team at Butterworth had a good reason to wanting to keep me admitted there was no stopping me. I just had to get out of that hospital and breathe, because in my mind I was literally going a little crazy.

For the first time, ever I got angry that I have been dealt a crummy hand and I felt sorry for myself. My husband was nervous to take me out of the hospital without full approval of the doctors, however I think he could see what was happening inside of me and he knew that I really just needed to break away. Within in seconds of being in the car, I started to cry. As we drove to get my prescriptions, I said, “I’m sorry. I know you didn’t want me to go, but I had to get out of there. I just cannot take it anymore.” I was struggling to keep up with all of the amazingly inspirational texts, cards, and posts, and I realized that I really just needed to “tap out” of the reality of my life and pretend that I wasn’t “Tammy the cancer patient.” Jordan could tell I was a mess, and I’m not sure he knew what to do. He reminded me that I needed to cut myself a break because it has been a crumby few weeks, as I watched quietly out the window, but it wasn’t helping. Everyone I saw seemed to represent something I no longer have in being out and about enjoying life. That alone seemed to fuel my frustration even more as they reminded me of how much I am still loosing in this battle. With the flip of a switch I was crying again.

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Packing my surgery bag again

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It’s like a ready to deliver pregnancy bag, just without the prize at the end.
The past few weeks have been quite a roller coaster with this whole pneumothorax thing, but after a few trips to different specialists, several repeat CT scans and being sent to the ER a few times, the pain is only getting worse along with the other symptoms and the hole appears to be getting bigger rather then healing on it’s own, so I am having surgery this morning to place a tube in an attempt to try to get the trapped air out and allow my lung to re-inflate. Because of my size and the size and placement of the hole, my thoracic surgeon is having intervenes radiology place the line and then I will be placed in his care for the next few days. I was told to plan on staying 4 days in the hospital, but if things go extremely well I may be able to come home sooner.

Because of the location of the hole it’s a little more complicated and there is potential that another portion of my lung could be nicked in the process, so I will be watched pretty closely for the first few days. My husband and I joke that Spectrum should give some sort of punch card out for frequent visits to the OR but sadly I am becoming a pro at this surgery stuff. I am not worried about the surgery, in fact this should be my easiest one yet, however my nurses are warning me that this will be quite painful which is kind of bumming me out a bit. There are so many other details to all of this that I will share a bit later after I come out of the fog, but first I need to finish packing my bag and get in the shower. We have to be at Butterworth at 7 and my procedure should take place around 10. Here goes nothing…..

#yetanothersurgery #mypersonalpinktime

Sharing and Teaching Round 2

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When my Occupational Therapist asked me to let her do a live demonstration or therapy session on my cording during a presentation on Post Mastectomy Cording and Lymphedema that she was giving the GVSU graduating OT students this past December, I really didn’t know what to expect…  or should I say; I didn’t make time to over-think what was about to happen as I often do. Instead, I kept my promise to allow this journey with breast cancer, to take me where I was meant to go and I accepted the invitation to share some of the real struggles that come from breast cancer with young students who will indeed be in the position to help women like me in the future. Although I walked into the lecture hall not knowing what to expect, I was completely in the moment and did exactly what felt right. I shared not only a bit of my story, and the struggles I am still facing post mastectomy/reconstructive surgeries, but I also bared all and showed my real lasting breast cancer battle scars and a glimpse into some of the drastic physical effects of breast cancer and how that impacts or  limits aspects of your everyday life after breast cancer. I know I have said this many times before, but before my diagnosis I would have never shared these details with even my closest friends let alone a group of students I have never meant, but this year has opened me up in ways that I cannot explain. My own personal insecurities now fall second to my passion to make a difference and turn my crazy year into some type of positive. So far, following my my gut impulse and most importantly following my heart in the moment, has not let me down this year and this day was no different. Every student in the room had compassion, was engaged, and most of all every student was there in the moment with me. I was at ease, and I felt safe, but most of all, I felt like in that exact moment, I had the ability to give each and every student a real look at what a young woman with breast cancer really face, even the things that nobody really ever talks about, and I had the ability to help my amazing occupational therapist Amy teach these students first hand, so that one day when a woman dealing with all the physical struggles that come from breast cancer is sitting in their office, they will be able to better help them with a better understanding of their struggles. Although both my husband and I were both shocked at how much I actually shared, there was no regret. I walked out of that classroom feeling grateful that Amy asked me to be a part of her presentation, but also feeling like being there that day, was in a way fulfilling one of the purposes that has been laid before me.

_DSC3485 copy_1140That purpose got a little greater, a month or so back. A few occupational therapy students from SVSU in Saginaw, MI happened to see Grand Valley’s post about the presentation that Amy and I give on Facebook and they contacted me right away to see if both Amy and I would be willing to do a very similar presentation for their class as well. Originally they wanted us to be a part of a conference that involved, professionals, students, faculty, patients, and caregivers, however the dates just didn’t align on our end so we ended up doing a presentation one a Friday afternoon after their classes had let out. This time around, I knew what to expect, I knew that I would be talking and sharing with these students and I knew that there was a pretty great potential that I would again open myself up and bare my scars…. So I took the time to over-think it and I was nervous, but talking with my occupational therapist on the 2 hour drive to Saginaw helped so much. To our surprise there was no professor or instructor present that Friday, and no one was requiring that these students  were present for our presentation. In fact, they  arranged this lecture on their own time, because they wanted to be there, they wanted to meet the two of us, and most importantly they wanted to learn from us.

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Realizing that, put my mind at ease right away. As I sat on the table and listened to Amy give her breast cancer background and her post mastectomy cording intro, I realized that again I was right where I was meant to be. My OT Amy, is quite amazing herself and also happens to be a young, two-time breast cancer survivor herself, so she comes with expertise from both a professional and a personal level. She explained what happens to a woman’s body during and after breast cancer, and breast surgery, and she talked about the struggles that we breast cancer warriors face every single day.  Each and every student was hanging on every single word. I found myself taking in all that she was saying and in a sense educating myself  “on the other side of my breast care”. That was until she got the the part where she explained that typically, post mastectomy cording takes about 4-6 weeks to break up, and that it usually gets better, but that I was her  special case, because my cording is very pesky and complicated in that it keeps returning with a vengeance thus proving that I am again that .01% that broke the mold. Oddly this surprised me. Amy then worked my cording in front of the class to show how she stretches, pulls, and even tries to break the cords that restrict the movement in my shoulder and arm. Let’s just say she didn’t hold back, so it was at times hard to hide the pain. OK it was quite obvious that it was painful….  but I did my best to smile through it. When it came time for me to share the real battle scares, the nerves had settled and it just felt right. Honestly if felt very much like an intimate conversation with a somewhat large group of people, if that is at all possible. The students were again, quite respectful, engaged, and almost captivated at what both Amy and I had to say, which meant we again walked out with no regrets. I feel so honored that I was able to be a part of Amy’s presentation and again I feel very honored that I was able give the students from SVSU a first hand look at what one of their future patients might be facing.
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#sharingandteaching #mypersonalpinktime #SVSUotprogram

Full surgical update

surgery_1140Surgery itself has never caused me any anxiety for some reason, however I was a little nervous going into this last surgery. Not nervous to be put under again or even to add more surgical trauma to my ever growing list, but I was nervous to wake up and have to go through the painful recovery that I knew I would be facing being because I had almost the exact surgery a few months back. I knew that I would struggle to even hold my own weight in the days immediately following my surgery, I knew it would take months to heal the painful bruising and incision sites and that I wouldn’t be able to hold or really play with Corryn, and most of all I knew that it would again set my body back in the overall cancer recovery department.
surgery2_1140Like usual, I didn’t sleep a wink the night before surgery because my mind had gone into busy nesting mom-mode and was very much preparing to be physically down for a awhile, but as usual meeting my amazing photographer/friend Sam at the hospital, very much distracted me and made those surgical prep hours fly by. In fact, there were a few moments where I had actually even forgotten why I was at the hospital all together which is pretty amazing. We also had my mom with us as well as our new friend Brooke, who was there capturing video for a project I have in the works, so I could even go as far as saying that this time, was “fun”. Before I knew it I was removing my healing and protection jade necklace, and they were connecting all the tubes and wires and wheeling me off to surgery. Before going into surgery, my amazing plastic surgeon had laid out her plan for me, which included cutting out some irritated scar tissue that had formed around my chemotherapy port site incision as well as injecting some steroids into the site to keep the irritation from returning, the removal of my left tissue expander, the placement of my left breast implant, phase one of my left nipple reconstruction, fat and tissue grafting from my thighs again and placement into both breasts, as well as  immediate stretching of my right breast skin, and placement of my right implant; if possible. But, we had  also talked about placing a tissue expander on the right side if all of this wasn’t possible once she got into surgery. The list was long and again meant a pretty big recover,  but I knew it would be great to make all of this progress in a big combined surgery.

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Sharing and Teaching Round 2

_DSC3460 copy_1140When my Occupational Therapist asked me to help and let her do a live demonstration on me during a  presentation on Post Mastectomy Cording and Lymphedema that she was giving the GVSU graduating OT students this past December, I really didn’t know what to expect…  or should I say; I didn’t make time to over-think what was about to happen as I often do. Instead, I kept my promise to allow this journey with breast cancer, to take me where I was meant to go and I accepted the invitation to share some of the real struggles that come from breast cancer with young students who will indeed be in the position to help women like me in the future.. Although I walked into the lecture hall not knowing what to expect, I was completely in the moment and did exactly what felt so right. I shared not only a bit of my story, and the struggles I am still facing post mastectomy/reconstructive surgeries, but I also bared all and showed  my real lasting breast cancer battle scars and a glimpse into some of the drastic physical effects of breast cancer and how that impacts or should I say limits  aspects of your everyday life after breast cancer. I know I have said this many times before, but before my diagnosis I would have never shared these details with even my closest friends let alone a group of students I have never meant, but this year has opened me up in ways that I cannot explain. My own personal insecurities now fall second to my passion to make a difference and turn my crazy year into some type of positive. So far, following my my gut impulse and most importantly following my heart in the moment, has not let me down this year and this day was no different. Every student in the room had compassion, was engaged, and most of all every student was there in the moment with me. I was at ease, and I felt safe, but most of all, I felt like in that exact moment I had the ability to give each and every student a real look at what a young woman with breast cancer really face, even the things that nobody really ever talks about, and I had the ability to help my amazing occupational therapist Amy teach these students  first hand, so  that one day when a woman dealing with all the physical struggles that come from breast cancer is sitting in their office, they will be able to better help them with a better understanding of their struggles. Although both my husband and I were both shocked at how much I actually shared, there was no regret.  I walked out of that classroom feeling grateful that Amy asked me to be a part of her presentation, but also feeling like being there that day, was in a way fulfilling one of the purposes that has been laid before me.

_DSC3485 copy_1140That purpose got a little greater, about a month ago. A few occupational therapy students from SVSU in Saginaw, MI happened to see Grand Valley’s post about the presentation that Amy and I give on Facebook and they contacted me right away to see if both Amy and I would be willing to do a very similar presentation for their class as well. Originally they wanted us to be a part of a conference that involved, professionals, students, faculty, patients, and caregivers, however the dates just didn’t align on our end so we ended up doing a presentation one Friday afternoon after their classes had let out. This time around, I knew what to expect, I knew that I would be talking and sharing with  these students and I knew that there was a pretty great potential that I would again open myself up and bare my scars…. So I took the time to over-think it and I was nervous, but talking with my occupational therapist on the 2 hour to Saginaw helped so much. To our surprise there was no professor or instructor present that Friday, and no one was requiring that these students  were present for our presentation. In fact, they  arranged this lecture on their own time, because they wanted to be there, they wanted to meet the two of us, and most importantly they wanted to learn from us.

_DSC3537 copy_1140Realizing that, put my mind at ease right away. As I sat on the table and listened to Amy give her breast cancer background and her post mastectomy cording intro, I realized that again I was right where I was meant to be. My OT Amy, is quite amazing herself and is also a young,  two-time breast cancer survivor, so she comes with expertise from both a professional and a personal level. She explained what happens to a woman’s body during and after breast cancer, and breast surgery, and she talked about the struggles that we breast cancer warriors  face every single day.

Each and every student was hanging on every single word. I found myself taking in all that she was saying and in a sense educating myself  “on the other side of my breast care”. That was until she got the the part where she explained that typically, post mastectomy cording takes about 4-6 weeks to break up, and that it usually get’s better, but that I was her  special case, because my cording is very pesky and complicated in that it keeps returning with a vengeance thus proving that I am again that .01% that broke the mold. Oddly this surprised me. Amy then worked my cording in front of the class to show how she stretches, pulls, and even tries to break the cords that restrict the movement in my shoulder and arm. Let’s just say she didn’t hold back, so it was at times hard to hide the pain, OK it was quite obvious that it was painful….  but I did my best to smile through it. When it came time for me to share, the nerves had settled and it just felt right. Honestly if felt very much like an intimate conversation with a somewhat large group of people, if that is at all possible. The students were again, quite respectful, engaged, and almost captivated at what both Amy and I had to say, which meant we again walked out with no regrets.
_DSC3566 copy_1140We both actually really enjoyed every minute of it and mentioned that we could have spent hours with this delightful group of students. It was fun for even my husband Jordan who photographed some of the moments from the day, and playfully mentioned that the entire class had now been to second base with his wife. I feel so honored that I was able to be a part of Amy’s presentation and again I feel very honored that I was able give the students from SVSU a first hand look at what one of their future patients might be facing.
#sharingandteaching #mypersonalpinktime #SVSUotprogram

A Family Hospital Visit with Mommy

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My beautiful friend Sam, my husband, and my new found Friend Brooke captured photos and footage from my surgery day so there will be more to come, but I wanted to share this one image of my little family spending time with me while I was bound to my hospital bed for a few days post surgery. Luckily they had me nicely medicated so my pain was controlled and Corryn could get close allowing mommy hide a her pain with smile.

For my my awesome sister Kate who lovingly mothered me a bit today and will love hearing she’s right: Yes I am the crazy patient who always wears makeup on surgery days and the crazy patient that wets her budding hair out of her water cup, after her 4:30am vital checks in the hospital, I am the crazy patient who keeps facial wipes, deodorant, perfume and make-up by my bedside so I can freshen up and even apply a little eye makeup at least, so I’m not looking too much of a wreck when my doctors round around 5:30-6 am. My awesome but motherly sister thinks sometimes I need to let people/especially my medical team see just how awful I feel to ensure I am treated for all of my symptoms and quit making myself look healthier then I am with make-up and a big smile. (She laughs when she mothers so it’s ok). In retrospect she is probably right. Who am I kidding? After not letting me shower with left over surgical iodine all over my body and being stuck in a hospital bed for 4 days my medical team, and my visitors would have given me a pass to look like the hell I was feeling, huh? But I’m a girl at heart and even at my sickest moments, I want to look my best. Silly I know.

Another Scary Cancer Scan Down:

13043515_932071903581240_1882037906177800417_nI got up this morning like normal this week, my husband helped me out of bed which is a pretty painful process post breast surgery and grafting, he helped me to bathe and to get ready, I put my optimistic game face on, struggled but get down part-one of another cylinder of pre-CT scan liquid, and we left for my first appointment, which was an acupuncture appointment for my breast cancer clinical trial. I was still obviously hurting, feeling pretty weak, kind short of breath and a bit nauseous, but mentally I was good. I actually thought acupuncture was a good way to start a scary day, but while lying on the usually calming table my eyes started to well up with tears and I realized I am little scared about this test. People always ask me how is it that I am always so optimistic, so positive, and how it is possible that even in the scariest and most painful moments I still have a smile on my face. The truth is I don’t know. I guess I am just naturally an optimistic and happy person and I am pretty good at hiding the pain and the fear, but I will admit that although I am naturally this way, it doesn’t mean that I’m not sad, scared or even worried a times. Maybe it sounds crazy to say that sometimes I am both optimistic and scared at the same time. But really I just think it means that I trust my medical team, I have faith, and I have learned that I am strong enough to face each step of what has become the rest of my life with cancer.

Rest and Recovery

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After a few days in the hospital, I am officially home and resting. I will admit that I although I was still in some pain from my first round of grafting in December, I really had blocked just how painful this aspect of my surgery was going to be, but the extreme muscle weakness and pain came flooding back into my mind, the moment my post-opt nurses tried to get me out of bed for the first time. To be completely honest, I am in a LOT of pain and I am moving really slow so far, but at least I am home. At this point there isn’t much that I can do on my own with the compression garments that I have to wear from my chest down to my knees. Ok, to be real, I cannot do anything on my own. My husband has to help me remove my compression garment so I can use the bathroom, I am not allowed to shower or take a bath yet so he has to help me sponge clean and wash my hair, and he literally lifts me into bed and wipes away the pain induced tears that fill my eyes when getting into bed.

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