Lung Scan Results Are In

Screen Shot 2016-07-30 at 1.28.53 AMGood News….Lung Scan Results are in:
The results show that the nodule on my lung is stable and it looks to be benign which is the very best news! No more cancer. Big sigh of relief there!

On the bummer side, the test also reviled that I do have a small hole in my lung causing pneumothorax, which explains my shortness of breath. My oncologist wants me to go to the emergency room where they would either insert a chest tube or needle into the lung to help it re-inflate it, if it gets worse this weekend, or if I’m ok the way it is, she wants me to come in Monday for a chest x-Ray to see if it will eventually correct itself or if we need to fix it. A bummer of course, but it’s treatable, and it means that the shortness of breath is not a lasting or long-term side effect from the chemo. This I am very thankful for. 😀

#mypersonalpinktime

Taking the Bad with the Good

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Taking the Good With the Bad:
Last week was full of high moments for me as I experienced my first National Cancer Survivor Week. To start off my week, The Susan G. Komen Organization shared my story on their home page and with a survivor day campaign that they are running to bring hope and comfort to women enduring breast cancer treatment with notes of encouragement. On Tuesday, I saw my oncologist for my 3 month check up and she not only raved about my reconstruction progress, but also said that there was no sign of any cancer return in my breasts and later that day Spectrum Health Beat posted a story about my journey with breast cancer and the vital part that my medical team played in the last 15 months of treatments and surgeries. On Wednesday I wasn’t feeling great so I spent the better part of the day at infusion, but during that time, I was asked to do my first ever radio interview, which was a little intimidating at first. Following the interview and my infusions, I headed down stairs to check out the Spectrum Health Cancer Center’s Cancer Survivor day celebration at Lemmon Holton where I met some pretty special people. One being a very sweet young lady. I was sitting with a friend when she came up and said “Tammy?”. Her eyes instantly welled up with tears before she could get another word out. She said she has been following me for the past year and that she has followed many cancer stories over the years and none have touched her in the way that my story has, which was so touching to hear. She said I usually never do this, but I saw you and I had to come up and tell you how amazing you are and how much you have inspired me. I asked her if she had been personally touched by cancer and she struggled to hold back the tears as she said, “I lost my aunt to breast cancer when I was younger. She was everything to me and I am now living my life in a way that honors her.” I got goose bumps all over my body, but in a good way, as I too lost my aunt at a very young age to breast cancer, and I too made a promise to live my life in a way that honored her. Although we didn’t chat for too long, she left a little imprint on my day and on my heart. I ended my week by finally releasing a sneak peek video teaser of the Breast cancer awareness project that has been in the works since the day I was diagnosed,which was a release of emotion in itself. I still have a lot of work yet to do, but I am very excited to release the full project into the public very soon.

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All of this sounds really great, but there is one moment among all these happy and joyous moments that I haven’t shared. Before I left my 3 month oncology appointment with Dr. Melnik, she mentioned that my post treatment and surgery nausea may be because of some gall stones that have shown up on my scans, so she suggested I see a surgeon about potentially having my gall bladder removed, and then… She let me know that they had found a nodule on my lung in a previous scan. Right away, she said that it could be nothing, but she also said that they have to take anything in the lungs very seriously because it is not uncommon for breast cancer to move to the lungs, which is not what I wanted to hear. She said we have to do another scan to take a closer look and makes sure that this nodule is not more cancer. As usual my heart skipped a beat, but I have had many scares already in this journey so I am getting better at putting my fear aside and letting the positive guide me through. Although it is always scary to hear you have to be re-scanned for anything, I was able to kind of dismiss it and tell myself it was nothing. However seeing my husbands eyes well up with tears and his mind fill with fear again, as I shared this with him, reminded me how serious this situation is and always will be. Just seeing the fear on his face took me back to those scary first few days last year. The truth is, having even a small chance that there could be more cancer growing in my body and knowing that I could be faced with all of this again, has a way of sending your mind into panic mode.

I will be honest, I originally didn’t think this was something I was going to share because this key part of my post doesn’t exactly go with all the good that cancer survivor week had brought last week, but I am realizing that this key part has a bigger part in this whole message all together. To be completely honest I am not a huge fan of the word “survivor” or at least I wasn’t. I kind of felt that if my medical team could tell me that I will never have to deal with cancer again and that cancer was just a part of my past and will never be a part of my future, then I could refer to myself as a cancer survivor, however we don’t know if that is the case. I started my battle with cancer last year, I battled my way through treatment, I battled my way though surgeries, and now I am battling my way through post treatment care, and the lasting effects of breast cancer. My fight started last year and it will not end until the day I take my last breath (which will hopefully be many many years down the road), so I prefer to call myself a “Cancer Warrior”. I’m not sure if my battle will ever be won because from what I understand you don’t really ever fully win a battle with breast cancer… Although it has a high cure rate as they say, it also has the ability to lay dormant in other parts of the bod for years until it rears its ugly head again, so it will always be lurking in my mind, and I feel like I will always be fighting. In explaining this to my infusion nurse, she said, why is it that you don’t like to attach the word survivor to you? How does it make you feel? She does that sometimes… just puts you on the spot and makes you face and work through your reality but she did kind of see my point. However it must have been on her mind, because she returned to my little infusion cubicle a little later to tell me that she looked it up and the term “Survivor” is actually derived from the Latin term “la Vevere” which means “to live or living”. The dots immediately connected in my mind. Although Cancer will always be a part of me and I will constantly be reminded that my “cancer” could return, I don’t have to let it own me in the mean time. That’s when it clicked that I needed to share this part of my week with all of you because dealing with constant fearful moments like these and still getting up each morning and putting a smile on my face for the ones I love is what truly makes me a survivor. I do have some control here.. I can wake up every morning and choose to live and not let cancer control me in this very moment. Even with the scares that seem to keep coming at every pass, I can take the good with the bad, and I can choose to be a survivor. I can choose not to let cancer win and keep me down and that is a choice I am going to keep making. So I am a “cancer warrior” who will not give up, but at the same time I am also a survivor who chooses to live. In the mean time, I am going to hope and pray that this scare with my lung, is just that… a scare.

Although the fear that comes with a cancer diagnosis will never get easier, I am accepting that this is a part of my life now and I am choosing to remain optimistic. In talking to both my nurse and my OT today, there really is a greater chance that this scare is nothing to worry about, but none of us will be able to move forward until we know that for sure. For now an order has been placed for another scan to take a closer look at my lungs and I will be seeing a surgeon about my gall bladder in the coming weeks. As usual I will keep you all posted.

‪#‎cancersucks‬ ‪#‎mypersonalpinktime‬

A Morning started in fear

If you have ever been diagnosed with a serious health condition, you know that any appointment that ends with the words “I’m sending you to radiology for an ultrasound right away” has the potential to test any confidence you have and fill your mind with fear. This was how my morning started. A few weeks back I found a small lump deep in my armpit nested very closely to my tissue expander. I immediately talked myself into believing it was nothing, however I couldn’t get it out of my head, so I shared my discovery with a friend who has also faced breast cancer this past week. Her advice was to call my oncologist to have this checked out right away just to be sure. I made the call Friday late afternoon and was given a 9:00 am appointment today.

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Pathology Results and Staging

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Today was in a sense “D” day with my amazing Surgical Oncologist Dr. Marianne Melnik who performed my bilateral mastectomy just over 3 weeks ago (My first surgery). Before walking into the exam room I was greeted by hugs from both Dr. Melnik and her amazingly sweet and helpful nurse practitioner, Kim. With a camera in tow I began to explain that I had a photographer documenting my journey in photos and that I really wanted something bigger and more positive to come from all of the negative that seemed to be surrounding me. Although Sam was not able to be with us today, Jordan acted as a stand-in to capture the raw moments. Watching both of their faces light up as I talked of my plans filled my heart with warmth and joy and oddly distracted me from our meeting intentions.

I’ll be honest, over the past few weeks I have been preparing myself to hear that I would only require 5 years of hormone therapy and at the most 5 weeks of radiation treatment, however the Onco-type testing results from tissues taken at the time of surgery came back with higher levels then expected which means that my treatment course now requires Chemo, radiation, and hormone therapy. As Dr. Melnik gave me the news my heart sank and my body and mind instantly went numb. In a weird way having cancer without the need for Chemo almost felt like not exactly having cancer, or at least having a lesser form. Now that Chemo is in my future this cancer and this diagnosis seems so much more real and in a way it feels like I am now having to tell everyone the bad news for the very first time all over again.

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I will admit hearing the words Chemo hit me like a ton of bricks, yet I still haven’t broken down and cried. I’m not sure why that is really but I think keeping my game face on gives me the strength I need to get through this. I know going forward that the loss of my hair will be my hardest day. Right now I have the ability to put on a strong face and hide behind my healthy looking exterior however I am facing the reality that Chemo will without a doubt strip my healthy exterior and bring me down to my most vulnerable of forms. Not being able to hide what is happening to me is my greatest fear, but I’m doing all that I can to embrace the good in all this and stay as positive as possible. Even though each day seems to bring a little more negative news my way, I am also reminded of all of the wonderful people and more importantly I am reminded of the amazing doctors I have fighting in my corner. I’m so happy to have the medical team that I have surrounding me right now and just as grateful for all of the wonderful people that have come into or even come back into my life since this journey started.

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In talking with Dr. Melnik and a Chemo specialist I was comforted in the fact that cancer treatment in general has come a long way in recent years. There is no doubt that this year is not going to be a fun one for me, however I am being told that the side effects have greatly lessened, and I will not only be able to function, but that I will also be able to work throughout my entire treatment course which was huge for me.

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I’m not sure how, but even in the moments the news was delivered Jordan was able to spring into action and capture the rawness of today’s meeting in Sam’s place. Perhaps it was the perfect distraction for him or and he saw how special it was that I was at least among the kindest of medical professionals when given the news or maybe he himself found it comforting to hide behind the camera. Either way I am so thankful he got the shots he did

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Going forward I will admit I have fears but I am also VERY confident that my specialist’s extensive knowledge paired with the care I see in their eyes and the hope i feel in their hearts is going to give me my life back. I am sure that Spectrum Health has a ton of exceptional Oncology Physicians on staff but I can openly say that I hold Dr. Marianne Melnik, at the very top of my list.

#mypersonalpinktime